Myositis: Causes, Symptoms & Diagnosis

California Sports and Rehab | Dr. Hakimian, Nerve Specialist in Los Angeles and Orange County

What Is Myositis?

Myositis is a rare autoimmune disease that causes your immune system to attack your own muscles. This leads to chronic muscle inflammation, weakness, and pain. Over time, the inflammation can make simple movements—like walking, climbing stairs, or lifting your arms—much harder.

The term “myositis” literally means “muscle inflammation.” It’s one of several inflammatory myopathies, conditions that affect the muscles that help you move. Myositis can develop gradually or suddenly, and symptoms can vary from mild to severe. While there’s no cure, proper treatment can put the disease into remission—meaning inflammation and symptoms improve or even disappear for a period of time.

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Common Symptoms of Myositis

Myositis affects muscles throughout the body, but symptoms can differ depending on the type.

Common signs include:

  • Muscle weakness (often in the hips, thighs, shoulders, or upper arms)
  • Muscle pain or tenderness
  • Fatigue and feeling unusually tired
  • Swelling or inflammation in affected muscles
  • Difficulty swallowing or breathing
  • Skin rashes (especially in dermatomyositis)
  • Trouble gripping objects or standing up 

If you suddenly experience muscle weakness, difficulty swallowing, or shortness of breath, contact your doctor or go to the emergency room immediately.

Types of Myositis

There are several main types of myositis, each with unique features:

Polymyositis

Affects multiple muscles—usually those near the center of your body (hips, thighs, shoulders). It develops gradually, causing progressive weakness that may make it hard to climb stairs or lift objects.

Dermatomyositis

Affects both muscles and skin, causing rashes on the face, knuckles, chest, or back. It can appear in adults or children and sometimes increases the risk of certain cancers.

 Inclusion Body Myositis (IBM)

It usually affects people over 50 and progresses slowly. It causes weakness in the hands and lower legs, making it difficult to grip objects, walk, or stand. Swallowing difficulties are also common.

Other Forms

  • Necrotizing myopathy: Severe inflammation and muscle fiber damage.
  • Juvenile myositis: Occurs in children, often with skin involvement.
  • Antisynthetase syndrome: Includes lung inflammation and arthritis along with muscle disease.

 

What Causes Myositis?

Myositis is an autoimmune condition, meaning the body’s immune system mistakenly attacks healthy muscle tissue. The exact cause is not fully understood, but it may be triggered by:

  • Genetic predisposition
  • Viral infections (such as flu or HIV)
  • Certain medications
  • Other autoimmune conditions (like lupus or rheumatoid arthritis)
  • Environmental factors (toxins or sunlight exposure)

How Myositis Is Diagnosed

Diagnosing myositis can be challenging because it’s rare and its symptoms overlap with other conditions. At California Sports and Rehab, Dr. Hakimian uses advanced diagnostic tools to evaluate muscle and nerve function.

Diagnostic tests may include:

  1. Physical and Neurological Exam: Evaluates muscle strength, reflexes, and mobility.
  2. Blood Tests: Check for muscle enzymes and specific antibodies that signal inflammation.
  3. EMG (Electromyography):
    Measures the electrical activity of muscles to detect abnormal nerve-muscle communication.
  4. Nerve Conduction Study (NCV):
    Assess how quickly electrical signals move through your nerves.
  5. MRI (Magnetic Resonance Imaging):
    Shows inflammation and damage in muscle tissue.
  6. Muscle Biopsy:
    Confirms inflammation and helps identify the specific type of myositis.

💡 EMG and NCV testing performed by Dr. Hakimian can help distinguish myositis from other neuromuscular conditions such as neuropathy or myasthenia gravis.

Treatment and Management

There’s no permanent cure for myositis, but with proper care, most patients can manage their symptoms and lead active lives.

Treatment options may include:

  • Corticosteroids: Reduce inflammation and improve muscle strength.
  • Immunosuppressants: Help control the immune system’s attack on muscle tissue.
  • IV Immunoglobulin (IVIG): Provides antibodies that calm immune activity.
  • Physical Therapy: Gentle exercises and stretching improve mobility and prevent stiffness.
  • Lifestyle Support: Adequate rest, a healthy diet, and avoiding overexertion can all help maintain strength.

With ongoing monitoring and adjustments, many patients achieve remission and maintain independence.

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Living With Myositis

Living with myositis requires balance—between rest, treatment, and physical activity. Here are some helpful tips:

  • Listen to your body and rest when fatigued.
  • Avoid extreme heat or cold, which can worsen symptoms.
  • Stay consistent with medications and follow-up appointments.
  • Work with your doctor or physical therapist on a safe exercise plan.
  • Seek emotional support—living with a chronic condition can be challenging.

At California Sports and Rehab, Dr. Hakimian focuses on long-term management, education, and improving each patient’s quality of life.

Frequently Asked Questions (FAQ)

Q1: Is myositis curable?

 There’s no cure yet, but treatment can control inflammation and put the disease into remission. Many patients experience significant improvement.

 Diagnosis requires specialized testing, including EMG and possibly muscle biopsy. If you have persistent weakness or fatigue, a nerve specialist like Dr. Hakimian can evaluate you.

 Yes — light stretching and low-impact exercises under medical supervision can help strengthen muscles and prevent stiffness.

 Myositis is not contagious. Some people may have a genetic predisposition, but most cases occur spontaneously.

 See a doctor if you have unexplained weakness, pain, or trouble moving. Seek immediate medical attention if you can’t swallow or breathe properly.

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When to See a Nerve Specialist

If you notice new or worsening muscle weakness, or if daily tasks are becoming difficult, don’t wait.
Dr. Hakimian at California Sports and Rehab offers expert evaluation and testing — including EMG and nerve conduction studies — to help diagnose and manage myositis and other muscle disorders early and effectively.

 Call 310-652-6060 or Request an Appointment Online today to schedule your evaluation.

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